Thursday, March 31, 2011

A diagnosis I didn't see coming.

After extensive testing with the school psychologist and conferring with a private neuro-psychologist, AC has been diagnosed with a learning disability.  I am still in the shocked and acceptance phase so I'll have to talk about this in more detail later.  My mind is still swimming!

On another note, tomorrow is MRI day.  We will finally have answers about AC's headaches!!!  If the MRI is clear then AC's headaches the past couple of months have been stressed induced. This is our prayer!

AC is a little stress bug and lots of pressure has been put on her at school.  She is petrified of being held back and cannot seem to get that thought out of her head.

If the MRI shows any complications there will be talk of surgery again.  I'm not going there...

Wish me luck.  I'll be taking AC to the MRI all by myself.  Last time she had one I had to pry her out of the car and carry her in.  She is a little heavier and a lot taller this time...I don't think I have it in me to do that again!

Maybe the excitement of getting to see Dr. B. will get her through the MRI....

Monday, March 14, 2011

I have a blog? Long overdue update....

I don't have it in me to make this pretty so I'll hit the high points.  We'll have more answers on the 31st....

  • AC's severe headaches returned in January.  She has been taken off Tylenol and put on a prescription for migraines.  It's not helping....but at least she has learned how to swollow a pill.
  • Her neck and shoulders are swollen and tender and seem to be pooling CSF (cerebral spinal fluid) like  before the decompression surgery.
  • She will be having a head and neck MRI on March 31st at Scottish Rite.
  • Special Education testing has been performed at her school and we are meeting with an Independent Neuro-psychologist  for further testing next week.  
  • She is having trouble finding her happy.....and that makes me sad.
We have been blessed with 4 different doctors who are all determined to find out what is going on in that big ole brain of hers.

We are praying for an easy fix!