Monday, March 14, 2011

I have a blog? Long overdue update....

I don't have it in me to make this pretty so I'll hit the high points.  We'll have more answers on the 31st....

  • AC's severe headaches returned in January.  She has been taken off Tylenol and put on a prescription for migraines.  It's not helping....but at least she has learned how to swollow a pill.
  • Her neck and shoulders are swollen and tender and seem to be pooling CSF (cerebral spinal fluid) like  before the decompression surgery.
  • She will be having a head and neck MRI on March 31st at Scottish Rite.
  • Special Education testing has been performed at her school and we are meeting with an Independent Neuro-psychologist  for further testing next week.  
  • She is having trouble finding her happy.....and that makes me sad.
We have been blessed with 4 different doctors who are all determined to find out what is going on in that big ole brain of hers.

We are praying for an easy fix!

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