I got a phone call today from the pediatric neurosurgeon's office. Dr. Hudgins is no longer accepting new patients and is leaving the practice. We had heard such wonderful things about him and knew that he was completely qualified to treat our daughter. My heart sank. We are now going to see Dr. William Boydston. I asked the nurse if he knew about Chiari and she was quick to reassure me that AC would have probably ended up with him anyway and he deals with Chiari regularly. I've been researching him all afternoon and the results are fantastic. Thank you Lord for this blessing!
Our new appointment is on September 3rd, at 1:00. Those two extra days seem like forever, but I'm just thankful it wasn't two weeks longer...or worse.
Yesterday, I picked up a CD of AC's CT Scan. I just knew that I would be able to see everything...but no. I can't figure out how to see the view I need to see of the brain. I wish I hadn't read the radiologist's report. I'm still looking up some of the big words. I will let everyone know what the report is after it is explained to us by the specialist.
AC is holding her own. Some days are worse than others. School is our big challenge right now. The noise and florescent lighting intensifies her headaches. We are trying to keep her in school as much as possible but I hate seeing her suffer.
Saturday was our miracle day. She was completely headache free!!! We watched TV Saturday morning and then hit the mall. We ended Saturday by making chocolate covered strawberries with Grammy. Retail therapy, chocolate, and Grammy are three of her favorite things.
Cole is very happy that baseball is starting up this weekend. Tryouts on Saturday, then teams formed next week. He hasn't picked up a baseball since All-Stars ended but I know he'll do fine. Our family functions better during baseball and I am ready for some normalcy.
I got another full night of sleep thanks to Unisom. I still felt a little drugged this morning and I haven't been very productive today...I'm still in my pajamas. After 2:00 I didn't see the need to get dressed when I'm just going to be back asleep in a few hours. I love days like this.
I got a very sweet email from my sister-in-law, Melissa, last week. She gave me this very needed scripture:
Matthew 11:28-29
28"Come to me, all you who are weary and burdened, and I will give you rest. 29Take my yoke upon you and learn from me, for I am gentle and humble in heart, and you will find rest for your souls.
The support we have been shown in the past two weeks is overwhelming. We know we are loved and feel the effects of your prayers.
Thank you for blessing our family!
Tuesday, August 25, 2009
A delay in my timeline....a total God thing.
Posted by Allie at 2:50 PM
Subscribe to:
Post Comments (Atom)
3 comments:
Hey Allie! Sherri here (from elementary school in Elberton). Just came across your blog via your Facebook page. A friend of mine was recently diagnosed with chiari as well and is suffering horribly. Seems like she gets worse every day. Let me know how the neurosurgeon visit goes. I think my friend needs to find a good neurosurgeon. Love and happiness to you and yours.
Oh Allison, my heart goes out to her having those severe headaches! No mom wants to see there child suffer at all! Madilyn went through a time where she was having severe migraines and still has them every now and then. But sleep and medicine can resolve hers easily. I am praying that AC's treatment will be simple and effective! I am also so glad to hear that you are seeing the Lord working in this even through the choice of doctors!
Much love to you all!
I'm praying for y'all everyday! Thanks for keeping me company last night! Love y'all!
Post a Comment